Four years ago today was one of the scariest days of our lives. (It's a three-way tie with the day each of my two preemie children were born.) Rosie was five years old and we knew something was wrong, but we didn't know what. I've written out the whole story already... you can read it HERE. I still can't retell the story of that day without crying.
Every year on this date the events of that day replay in my mind. I'll glance at the clock and think, "yep, this is about the time we got to the doctor's office", or, "we were sitting in the ER by now".
The good news is that, four years later, we've managed to tame this D-monster somewhat. Highs? Lows? Crazy cures proposed by strangers? Yeah, we can deal with those.
We still pray for a cure, but until then, D is just a normal part of our lives now... and we're OK.
I run through the whole day in my mind too... trying to remember in exact time our world changed forever. We were just at the Children's hospital where we took Elise after she was dx'd (another ER run for Mattias), and as we were leaving, I looked up at the tower where her room was, and had the most vivid memory of looking out the windows of the towner, crying. I hate when those memories sneak up on you like that.
ReplyDeleteHappy dia-versary, we're now 4 years in too and feeling okay too(you know... for the most part!).
Happy Diaversary! It certainly does get to be just another part of our lives, but I'm beyond ready for it to go away! :)
ReplyDeleteOur "D" day is forever etched in my mind and heart too. Sounds like you have been able to make some wonderful memories over the last 4yrs as you have continued to live your lives. This gives me hope that we will be ok too!
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